Benign Essential Blepharospasm Research Foundation (BEBRF)

The Benign Essential Blepharospasm Research Foundation was established by a Blepharospasm-Meige patient, Mattie Lou Koster. The Foundation was granted its charter in 1981. Its purpose is "...to undertake, promote, develop and carry on the search for the cause and a cure for benign essential blepharospasm and other related disorders and infirmities of the facial musculature..."
  • BEBRF is governed by a Board of Directors

  • BEBRF publishes a bimonthly newsletter. It also has a number of pamphlets and other informational material.

  • Research is funded and several workshops for researchers have been sponsored.

  • Annual international conferences are held with continuing education as a highlight. Both patients and the medical community participate in these conferences. Audio tapes are available from the annual conference.

  • There is at least one Area Support Group in most states.

  • A Medical Advisory Board provides advice on publications and reviews research grant applications.

  • Donations to the Foundation or subscriptions to the newsletter may be made by sending check or money order to the address below. Please print out and enclose the Donation Form

    The above-mentioned Donation Form is in PDF format. If you do not have the free Acrobat Reader plug-in for your browser, you may download it from getacrobat

Benign Essential Blepharospasm Research Foundation
P.O. Box 12468
Beaumont, TX   77726-2468
USA
Tel: (409) 832-0788
Fax: (409) 832-0890
E-mail: bebrf@blepharospasm.org
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