Disability Information for Blepharospasm Patients

Some people who are severely affected by blepharospasm or Meige and who do not find sufficient relief with injections or other medications, find it impossible to continue with their jobs. In some cases they resign because of their inability to perform their jobs; in other cases they are terminated by their employers.

BEBRF (Benign Essential Blepharospasm Research Foundation) has a packet of material available at no charge for those patients who are considering filing for Disability under the Social Security Act. Following are copies of some of the material which is included in the packet. Some brochures and publications that are included in the packet are very important but do not lend themselves to reproduction here. Patients who are considering making an application for disability under the Social Security programs are urged contact the Foundation for the full packet.

Benign Essential Blepharospasm Research Foundation, Inc.
P.O. Box 12468
Beaumont, TX 77726-2468
Phone: (409) 832-0788
Fax (409) 832-0890
E-mail: bebrf@blepharospasm.org

• Applying for disability benefits under Social Security
• Social Security Administration Links
• BEBRF pamphlets
• Definition of being "functionally blind"
• Medical reports to support your case
• Sample doctor's letter supporting disability application
  • In HTML format
  • In PDF format
  • In MS Word format
• Medical terminology used in articles on blepharospasm
• Personal experience/advice 1:Judy Blackman
• Personal experience/advice 2: Grace Anne Henry (updated May 2005) (downloadable 127 KB PDF)
• Disability information - legal aspects and employee benefits (Our inclusion of a link to this site reflects our opinion that it contains good information - not that BEBRF is in any way recommending the law firm which produced the site)

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