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Posted by: Dr Phil ® 04/11/2006, 15:01:58 |
As some of you know, I am stubbornly fighting BEB and naively searching for a cure. Two weeks ago I had an all-time low, with anxiety attacks, depression, anger, frustration - the works.
So what´s the secret?
Since I have had a very hard time trying to chnage my stressful life at work and at home, I knew I had to start somewhere else.
I´ll post a list of all the stuff I take at the end of this post. At any rate, I also added a few other pills like fish oil and JuicePlus.
I reduced my intake of coffee and increased my intake of water. After taking these pills for 2 weeks I have become a lot more positive, a lot less stressed, more enthusiastic about life in general and also have a LOT less BEB symptoms.
I am NOT saying "eat this and you´re cured" but I AM saying that this is working for me. Big time.
Next step for me is to see how far this lifestyle + pill factor will take me in terms of reducing the BEB symptoms or even stop them, and the first thing I will do is sto taking one of the pills at the time.
My advice to you if you have BEB is this:
Here are the pills I´m eating and dosage I use:
• Futura Fish oil (danish product by the company "Dansk Droge")
•Red Gerimax Ginseng extract (GGE) from "Dansk Droge" www.danskdroge.dk
•Juice Plus, produced by NSA international, UK (I believe they are originally american) www.juiceplus.com
•Modigen (www.jemopharm.dk)
That´s about it.
I hope this helps you all.
This may not be a cure, but it may be a damn fine alternative.
Lasse :) |
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Posted by: Rebecca ® 04/11/2006, 18:08:38 |
Ok, I'll try it. I'll do one pill for 2-3 weeks. I'll see if anything changes. If not, I'll stop it and try another. I'll try it all individually. If nothing works, I'll do the combo. Thanks for the info. What do we have to lose? |
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Posted by: Ann Doyle ® 04/13/2006, 18:45:47 |
Let me know how it goes Rebecca and I will give it a try. Ann Doyle Modified by Ann Doyle at Thu, Apr 13, 2006, 18:46:33 |
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Posted by: June in Toronto ® 04/11/2006, 18:38:01 |
Great news for you Lasse, I'm so pleased you are feeling better. I eat lots of fruits and veggies, take fish oils and other vitamins, only drink perhaps 1 cup of caffeine a day (sometimes not at all), always have drunk LOTS of water. I haven't tried ginsing or the Modigen. I'm a senior so working stress is not there - family stressors are right now, and I believe I have a good healthy lifestyle of exercise and nutrition. I look forward to others reporting on how this regime works for them. Continue the good work. June in Toronto |
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Posted by: Barbara ® 04/12/2006, 09:19:05 |
I am very curious about modigen. I reseached it on the internet and it contains components of St John's Wart. I know that are certains medicines that should not be combined with hypericine. Do you take any medicines now? I take Klonipin and i wonder since this is a German product if the pharmacist will even be aware of this supplement.
You post was extremely interesting and i wish you well with your tretments. Barbara |
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Posted by: June in Toronto ® 04/12/2006, 11:27:27 |
St. John's Wort is well know for causing light sensitivty - I certainly don't need anymore of that. June in Toronto |
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Posted by: Dr Phil ® 04/12/2006, 11:45:49 |
June, that makes sense to me. BUT! I have had a major problem with light sensitivity, and I take these pills and experience a CLEAR positive difference.
I cant tell you what to do or not to do, all I can say is that this works for me.
All the best,
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Posted by: Dr Phil ® 04/12/2006, 11:34:53 |
Barbara, I take no drugs or medication. Just those herbs/natural thingies.
Anything you can dig up about those products and their content would be great! :o) I´m sure that there is a "secret" combo in there that works. We simply need to find it.
I had a meeting today where my BEB symptoms were visible and annoying - but not nearly as annoying or worrying as they used to be.
Let´s keep looking into this. With some luck and focused work we may find the key to controlling BEB.
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Posted by: net Paul ® 04/12/2006, 12:35:53 |
Please keep this up,it is helpful to have an analytical study, but do report findings over 3-6 month period. I've found that sometimes any change will get positive resultsin the short term. It is the longer term we need to sustain with a remedy to have a successful fourmula. Just to let you know I am drinking more coffee now and it seems to be helping me. In the past I hardly ever drank coffee but since I have started up my symptoms are better. Go figure. |
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Posted by: Dr Phil ® 04/13/2006, 14:24:06 |
Paul, I´m absolutely with you.
I have no clue if my findings will prove longterm effects or not - the more who share this knowledge the better chanses we have of gretting results IMO. Coffee or not. IMO this condition is all about stress/feeling good. For some X works, for others Y. I have no clue why - so I have stopped focussing as much on the "why" and try to nail the "how". Would be great to get more input from you: What changes are you taklking about that helped you shortly and not in the long run? Lasse :) |
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Posted by: net Paul ® 04/13/2006, 17:23:16 |
Lasse, What really mystifies me is I seem to be in a cycle much like a rollercoaster. When I'm at my worst the next day day is usually good. After a bunch of good days I may take a nap or wake the next day and it sets off my eyes for a round of bad days. Things that I can't take one week like supermarket lights the next are no problem. It's been described as wax and wane. No reason for it. I do feel I have made big improvements in my Botox injections. Location in the inner/outer corners away from the fatty mid part of the eye lid,in much more agressive locations. This seems to lessen the wider changes in eye closures. Today I'm good, no problem, so I expect a change soon. I think we all could live through this if we just had that certain comfort level, not perfect but manageable. I also take fish oils, probably the one thing I have changed that I think works. I already eat very well. I have a list of tricks that help but hopefully we can find a better solution. |
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Posted by: betty blink ® 04/12/2006, 12:46:28 |
Wow! This is like playing Su-Do-Ku - the new puzzle out - the diabolical one. I've taken a Vit Cocktail for years - Vit A,B,C, E, Calcium etc. plus Cold FX for the immune system during cold and flu season. That has No. Am. Ginseng. However, if it works for you good and I hope your on to something; You certainly have the patience. Someone was asking me what causes BEB and all I knew was nobody knows what causes it. I blame it on the environment and all the pesticides and chemicals in the lawns and gardens; in the food we eat; and the antibiotics I took for chronic sinus infections + plus nasal sprays. I also had cancer treatments. I have no idea what triggered this. I think stress might have triggered it following several life crisis too close together; i.e 4 deaths (family and friends) Who knows. Good luck. Betty |
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Posted by: Dr Phil ® 04/13/2006, 14:38:09 |
Betty, I believe the cause of BEB is a mixture of predisposition and stress. Something upsets the cranial nerve(s) and makes us blink, spasm etc.
It´s no big news at all. Psycho-somatic disorders are more common than anything - and some will say that bad mental state is causing more problems in peoples lives than bad physical state. When stressed/low/depressed/hi strung we all react differently.
We seem to be "blessed" with BEB.
:) |
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Posted by: Tatia ® 04/13/2006, 15:18:05 |
Stress certainly can make symptoms worse, and probably can cause BEB in some people, but I don't think it is always a cause. When my eyes started closing, it was at one of the least stressful points in my adult life. I had experienced TONS of stress about 10-5 years before my eyes started closing. Marital problems, feeling like I was failing at my job, financial stress, working full time and driving an hour away 2 nights a week for grad school, a family scandal that ended in a suicide, etc. etc. Finally, when my life had been in order for a couple years- my master's was long done, I felt good about my job performance and was thoroughly enjoying work, issues had been resolved through marital counseling, hubby had a better job and I was making 2 times as much- that's when BEB turned things upside down.
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Posted by: June in Toronto ® 04/13/2006, 15:58:40 |
Its a fact that a pre-disposition to any disease can be brought on earlier by stress - as in the case of dystonias. I was blinking a lot as a child. You say "when we are stressed/depressed/hi strung we all react differently" - correct. You can add to the list of what "some people do/get" i.e., sleep deprivation or too much sleep. At the moment I have the latter - can't sleep more than a few hours at night and have been this way for about 6 weeks now (family problems - I know the cause). This can cause hypertension through extended exposure to raised 24-hour blood pressure and heart rate, elevated sympathetic nervous system activity, and increased salt retention (all researched facts). Brain function is supported by activating and inhibitory processes. Brain activation is high during waking, decreases during NREM sleep, and increases again during REM sleep. This involves nearly all structures of the brain. So, again you are correct -stress (as in sleep disorders) does affect the brain - whether the 7th cranial nerve is affected I don't know. That's why its particularly important to try and deal with our bad stress levels. Of course the good stress is fine - enjoy! You sure started an interesting thread. Best wishes. June in Toronto
Modified by June in Toronto at Thu, Apr 13, 2006, 16:00:13 |
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Posted by: betty blink ® 04/13/2006, 16:12:18 |
That sounds good! I don't dispute the stress factor. Some people have heart attacks; strokes; late onset diabetes; bad backs; fainting spells; amnesia; loss of voice; etc. Of course heredity and life style can also play a factor so there's an element of control for you in changing your lifestyle. I'm spouting some gut feelings because I'd like to know and I agree with you about the four deaths because that's when it started with me shortly after. I read a book years ago about a Dr who had a debilitating spine disease and he did heal and part of his treatment was related to laughter. Prayer is also a great healer. Everyone has a different stress level. If your pushed to the limit is that when you develop Post Traumatic Stress Disorder? Another interesting subject. Betty |
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Posted by: tomspasm ® 04/18/2006, 10:23:44 |
Hi Lasse, I can't believe a bright guy like you just wrote the following "I dont think for one minute that it is external factors like pollution, environment etc. These factors will cause a lot of other problems, but since BEB can be controlled to a certain extend, I dont see how it could be triggered by physical factors like those." There is a ton of evidence on this Board that the environment we are in plays a huge role for many of us - plenty of postings by numerous visitors here about dramatic increases in spasms in malls, stores, churches, airports, etc. Plenty of postings singling out fluorescent lights being a big problem, but nobody complains about incandescent lights... I could go on, but seriously, having been on this Board for awhile now, how can you NOT believe that the environment we are in is playing a role for many of us? Even you have posted about the fluorescent lights in the supermarket being a problem! TomSpasm |
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Posted by: Sue from Australia ® 04/12/2006, 23:20:17 |
Sounds good. I take a mix of vitamins etc, ginseng included. I feel really good at the moment and since taking my current vitamins my botox results have been better and so has life. I also walk every day before work, actually as the sun is coming up. This makes me feel really good and ready to start the day. I think positive thinking and a good self esteem is the key here. Whether you get it from "get up and go" vitamins or exercise, it seems to work.
Good luck, I'm interested to here results from others in a month or so. Sue. |
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Posted by: Dr Phil ® 04/13/2006, 14:41:05 |
JuicePLus are supposedly better than regular vitamins, since the vitains in JP are not chemical, but 100% natural.
Lots of chemical/artificial vitamins actually do more harm than good to your body. I´m not trying to sell you Juiceplus in any way, cause it may not be the best thing for you - I have just been told that it´s better than regular vitamins.
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Posted by: judith k ® 04/13/2006, 17:05:58 |
Take care about ginseng!
Too much caffeine can make me more blinky. I've been sensitive to caffeine for many years anyway (if I have coffee after mid-day, there's some chance it will interrupt my sleep, for instance), so I avoid it. It also can give me an unpleasant buzz. I discovered years ago (before I was every diagnosed with BEB or even had symptoms, like dry eye) that ginseng had the same effect on me as caffeine (the same effect, if not worse)--ginseng made me agitated, jumpy and buzzy. So I stay away from that stuff. Omega 3 fatty oils (as well as other fish oils, vitamin e, flaxseed) can help (at least can help dry eye) and that's a different story. Judith K |
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Posted by: Joan ® 04/18/2006, 19:30:59 |
Hi,
What an interesting thread! I did take Cold FX and my blood pressure went up so I checked the internet forblood pressure/ginseng. Ginseng , I read, does affect blood pressure so I stay away from it but if bp is not a problem for you I would presume it's okay. It's great to read about things that help you deal with this affliction. My last treatment only lasted about a month so I have a long way to go as I get shots every three months. The dose will be increased next time for sure. Keep on searching,everyone Share your successes . Gives a very positive and hopeful feeling. Best Wishes, Joan |
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Posted by: Jeroen Puttemans ® 04/14/2006, 11:22:59 |
hi, i am 8 months on magnesium citrate 200 mg twice a day and it helps reduce the cramps |
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Posted by: June in Toronto ® 04/14/2006, 18:50:54 |
So you haven't experienced any side effects with magnesium citrate? I read there are many and it should be taken for more than a week without a doctor's permission. Like niacin I experience flushing with this product. I'm glad it helps reduce the cramps for you - but please be careful. June in Toronto |
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Posted by: Angie in MS ® 04/20/2006, 22:33:03 |
I had botox shots last Oct. 2005, and the shots lasted until Feb. - which was amazing to us. I started taking the Juice Plus pills in November 2005 and I really think that may have something to do with the symptoms not appearing so soon. I'm am still seeing great so far after the last shots in Feb. So I think the Juice Plus may have a great deal to do with it. I haven't done anything different. The botox used to last 6 weeks if it helped at all. Some of you may consider trying it. It's heathly in other ways too. |
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Posted by: Rebecca ® 04/29/2006, 16:24:04 |
Can you tell me if you ordered your Modigen from the link yu provided or do you know if it can be purchased from a retail store? I have Emailed the folks and hope to get a reply next week sometime. The web site, however, did not mention the cost of the Modigen or anything about purchasing that I could see. Thanks,
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Posted by: Dr Phil ® 04/29/2006, 18:43:08 |
Hi Rebecca. I bought at the local pharmacy - no prescription needed.
FYI I´m still on the pills, and my symptoms are almost gone.
I wish more people in here would try it.
Lasse :) |
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Posted by: Rebecca ® 04/29/2006, 21:58:20 |
Might be more trying it than you know. Some folks are guarded about what they are gonna do. I'm not. I don't care. After all, it's natural, it's safe. What do I have to lose? I looked in Walgreens the other day for it and they didn't have it. Then I tried a local health food store and they didn't have it. I just thought maybe it HAD to be ordered. I am in Texas. Are you in the states? What drug store did you get it from? Is it a chain? The two major drug store chains we have here are CVS and Walgreens. Let me know please.Thanks for all the info!! Rebecca |
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Posted by: Dr Phil ® 04/30/2006, 05:14:08 |
Rebecca,
I live in Denmark...as in Scandinavia. So I simply bought it from my local pharmacy. As I said, I´d be happy to send you some pills - only thing you need to find out is if it´s ok to send nagtural medicine to the US. There are probably a lot of rules about this. I can try to send some, and see what happens, but I believe the best way - in terms of making sure you get the pills- is contacting the producer in Denmark (www.jemopharm.dk) and have them ship you some the correct way. Another way of going about this:
Let me know what you wanna do.
Lasse repetition of the info:
Modified by Dr Phil at Sun, Apr 30, 2006, 05:18:36 |
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Posted by: Rebecca ® 04/30/2006, 08:56:26 |
I have Emailed the company so I'll just wait and see if they respond soon. If not, I'll get back to you. Thanks so much for all the info. Rebecca
Modified by Rebecca at Sun, Apr 30, 2006, 17:07:27 |
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Posted by: Rebecca ® 04/30/2006, 15:41:51 |
Follow up: I have done a little internet research on Modigen since this post. Should I understand that Modigen is a brand name rather than an ingredient? I would look back through all the posts if I wasn't having such a bad eye day. It seems to me that you mentioned this in an earlier post. Hypericin is a natural product found in the yellow flower of St John's Wort. I get that. I'm just not sure what Perikon is or means. Are they one in the same. If Modigen is just a brand name for St John's Wort, I'll just take St John's Wort....in spite of the side effect of sensitivity to light...which I already have. But the clinching of my eyes closing all the time is more bothersome. So If I can get relief from that, then I'll be getting somewhere. Need you to educate me a little more on Modigen if you don't mind. Maybe I and others have what we need right under our noses! Thanks again,
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