Posted by: plw ®
05/04/2008, 17:09:13
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I am quoting the beb foundation in beaumont cards. "the term "Blepharospasm" means "involuntary forcible closure of the eyelids." It is out of a person's control. To date there is NO know cause and NO know cure. "Beign means it does not kill and it is not malignant."Essential" is a medical term which means of unknown cause."Blepharo" is a Greek word meaning "eyelid". "Spasm" is involuntary, convulsive contraction of muscles. This is "Benign Essential Blepharospasm(BEB)." I'm no doctor. but My eyes shut,squeez, blink, squint all of the stuff that is in this quote. I would contact this foundation who can give you a list of doctors in your area that are familiar with beb and given botox injections. Don't go to some inexperienced doctor it will cause you more grief believe me we can all tell you horror stories of events by inexperienced doctors. I went to a opthomolgist who diagnosed this but said I would be cured of it within weeks of the botox. Wrong. I went to a neurologist who did lots of illierate things and also wanted to cure me. then to another quack who said I had dry eyes and thats only 3 that I went to when I was diagnosed. Before I went to 2 family doctors, 4 optomologists, and a shrink and no one had a clue what to do. So don't give up. Educate yourself get all the help you can get from this site. There are many people who can help you more than I can. Don't believe the first thing they tell you. finally a happy ending I have a great eye surgeon who was on the beb list. and another question Why do they want to give her botox if they don't think she has it? The dry eyes doctor did that to me and I said I don't think so I am done here. They just want to make money off of you and your wife and that is wrong.Sounds like she has beb to me, and I would get another opinion by someone who knows about beb. I hope it all works out for you and your wife. I know how frustrating this is and is going to be. I had to give up working and drive occasionaly. Tv is torcher along with reading and using the computer and lights at the grocery store I just can't stand it. sometimes when I go to bed my eyes are twitching when they are closed!Sometimes anxiety meds like klonopin and ativan will help some not all of the time. They can make you sleepy, that is the only thing.
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