Welcome and you have had previous good response to your question. I hear you saying that your wife had twiching in her facial muscles and was diagnosed with blepharospasm. When spasms are in the facial area, it is known as Meige's Syndrome which I have. I understand some doctors choose not to treat Meige's, but I have received Botox injecton since 1985 for this disorder. Now you mention that her eyes are closed 90% of the time, the spasms may have moved up to the eyes at this point. Blepharospasm symptoms are blinking, spasms clamping, the eyes could burn, hurt and itch and the eyes close and it's difficult to open them. She may need Botox in the eyes too and it may take more than one visit.
Apraxia of Eyelid Opening is where the eyelid drops and the eyelid won't go up on it's on free will. Some people have Apraxia and blepharospasm. It's my understanding that some doctors don't kow how to diagnose Apraxia. I recommend that you contatct BEBRF at bebrf@blepharospasm.org or you could contact the District Director that presides over your state. You can find our email addresses by searching our web site. Hang in there and hopefully good results will be found for your wife.
Anita Croce, North Central District Director, BEBRF
