Posted by: Barbara ®
05/06/2008, 16:07:20
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Gary was one of the first to have DBS on BEB and meige. His story is not the only one. There have been success stories also...I urge you to join the DBS for dystonia at yahoo groups. Dee linde is the moderator and she is knows of other success stories about DBS for dystonia and if you do decide to go that route and you live on the midwest I do highly recommend seeing Dr Razai at the Cleveland Clinic. He is one of the world's best in this area
Best of luck to you.....DBS is wonderful for some and not for others.
Barbara
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