I want to welcome you to the BEB bb but I'm sorry you are going through all this hassle. I, too, went through 2 years before I got a diagnosis and I finally did that myself from reading a women's magazine which detailed dystonia and then going to another neurologist (that was 14 years ago and there is a lot more information available now). Patience is the name of the game, to find a good doctor who will be able to treat you. Stress is also very hard (thinking you might be functionally blind can cause LOTS of stress) and you need to try and control that, as hard as that may be. Check out the BEBRF link at the top of the main page - read all you can about this disease, get in touch with the Foundation for printed information. I'd go for that 2nd opionion if I were you - if possible. Let us know how you are doing - we can. Enjoy that toddler of yours.June in Toronto (beb/meige ove 14 years)
