I cannot believe some of the medical horrors that people have to go through. I would not want to see a doctor who does not even remember me or changes his mind on what he told me.I, too, had a small tumor discovered in the parietal region when I had an MRI to get to a BEB diagnosis. It was ruled to be a WOW (wait and watch). I will soon have a 3rd year MRI with no change in it during that time. I hope you will get a definitive answer on yours as well.
The best advice I got and used was to contact the area and state representatives from my area and talk to them about docs. You will find names and phone numbers on the home page of BEB. I called or emailed a number of them iny state and adjoining states and found a very good doctor. I hope you can do the same. I think he was about the 12th doc I saw on the journey of getting help. I know it will continue to be a hassle for you, but it will be worth it when you find the right person.
Good luck with finding a good doctor. We have several people who are RNs--past and present--who post to the board.
