Blepharospasm Bulletin Board

I'm so sorry you are going through all this. Especially with having to take care of a toddler. All the info suggested thus far I think is excellent. I'm also an RN (retired for a year now) and was told to see a psychiatrist. I was willing to do this BUT just thought I needed to check with a neurologist first. I was lucky because I used the help of the doctors I worked with to get me to see a movement disorder neurologist quickly. I do have blepharospasms. I'm not totally convinced you do but it's likely. The fact that each of your eyes act differently is of importance. I can quess as others but only a physician can truly help you. We can all offer support and tell you about our experiences but that's it. Where do you live??? Maybe one of us can suggest a doctor we have had good luck with,,,or call the foundation or your area rep...or district rep. If you do go to anyone, bring a copy of your MRI and notation of the tumor not having changed in the last year..

I have a few suggestions you might try while waiting for help. I've used scotch tape to keep my eyes opened. Sounds crazy but it's worked....Cover it with my bangs. Also, I have ptosis glasses which have bars in them the help keep my eyes opened. There's a picture of them on the foundation website. Some people have been helped by medications in conjunction with botox.

Another suggestion::: take pictures of yourself at your worst. Use a camera,,most will take small video's...this will help your doctor in treating you...it's NOT vain..

Keep a record of things that aggravate as well as help your eyes.