Blepharospasm Bulletin Board

For one thing Dee Linde and Sandy O had DBS not just for the blephs but all their Dystonia symptoms and they were fortunate enough to get good results in a timely manner. Dee's blephs have been in remission since 2003 and Sandy is doing well too. Dee is 99.9% symptom free and does not take any meds for Dystonia, so it's all due to DBS. BTW Gary manages without meds for Dystonia too.
Gary was not one of the first to have DBS for the blephs but also for all his Dystonia symptoms. He had the guts to take advantage of the technology that could very well work for him. So to say it didn't work is a misunderstanding I would like to clear up here and now. There is always hope and you cannot give up. We get discouraged like anyone else when the results are not instant but we keep going, learning more and more about what works.

DBS is an individuals choice and has worked for many, some sooner and some after a long period of time so what would have happened if they just threw up their arms and just gave up. The surgery is reversible and we are no where near going that route my friends Nor do I give up hope something better will come along which would be beneficial to everyone with a movement disorder whatever it may be.

BTW Botox does not work the best for Gary and he would not try a surgery. To date I do not think the surgery is reversible. Hopefully someone can enlighten everyone here.

My hats off to Tom Flurey and he chose to find his own means of relief from symptoms and will share it with anyone if only they want to try.

Wishing the best to you all,