Blepharospasm Bulletin Board

Re: Conference Shirley & others
Re: Re: Conference Shirley & others -- ahlene Post Reply Top of thread Forum
Posted by: Shirley Barr in New Mexico ®
07/02/2008, 19:22:52

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Betty, I was scared the first time that I went to a conference. I know that people that have met me will dispute this, but I'm not really a social butterfly either. And I wasn't at that first conference. I was afraid to talk to people and I didn't know what to expect. I have since "loosened up" and have gotten to know some people and now I really have a good time and can be myself. I've learned much from going to the conferences. I've met new people that I can be comfortable around and don't have to be embarrassed around.

It's remarkable to be sitting at a banquet table or a luncheon and half the table has their eyes closed or is going through some sort of spasm or making noises and NO ONE cares. We all have our own little individual symptoms and everyone is accepting. It's a bonding experience.

I did go by myself last year and it worked out fine...I even got to spend a little extra quality time with Steve and Jennifer on Sunday after the conference as they took me under their wing.

There is not a whole lot of "down time". Things move along very quickly at the conference and there isn't really that much extra social time. You meet people that you are sitting next to or people from this bulletin board. If you look at the actual schedule, you'll see that most all of our time is planned out. There is a little bit of time Saturday afternoon late where people usually rush back to their hotel room and rest eyes and maybe change clothes for the banquet that evening. The bulletin board people usually meet right before that (which is at a "social time/hospitality time with cash bar") I fore go the wine and grab people to take group pictures for the photo albums. By the time that we finish with the group pictures, it's time to go into the banquet area where we eat and then the entertainment begins. So the only time that you would even feel that you needed to make conversation is for a brief period while you are eating and before the entertainment begins.
I've always found it difficult, since my first conference, to get in enough time to actually visit with the people that I've met at past conferences and also meet new people.

I do understand the "painfully shy" thing...been there myself. But I think that you already kinda know me and Peter...probably others from the bulletin board. I'm not saying that you might not have a few uncomfortable moments but I think that they will be short lived and you will go away feeling very glad that you went.

Would your sister be willing to come with you? Once you get your foot in the door, I don't think that you would hesitate to come to another conference.

Hope that you decide to go. I would love to meet you!

Shirley in New Mexico




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