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| Re: Some things re Dystonia you may not have seen on the web | |||
| Re: Re: Some things re Dystonia you may not have seen on the web -- ahlene | Post Reply | Top of thread | Forum |
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Posted by: tomspasm ® 07/04/2008, 11:35:39 Edit |
Hi Ahlene, Please don't feel sick to your stomach or start crying - my life is not really that bad, trust me. Save your energy for someone who really needs it. How often I have those kinds of spasms depends on where I am and often what the weather is like. Normally at my house, I have mostly mild neck/shoulder problems, some special filters on my electrical system keep my eyes quiet most of the time. Just yesterday, as a thunderstorm approached and bolts were flying and it started raining, my mouth started jerking around pretty good and then my eyes started giving me problems when the heavy rain first started but they calmed back down pretty quickly. Today we will go to some friend's house in the neighborhood for a 4th of July party, and it's almost certain my eyes will be a problem there. Hopefully my frequency generator will keep things under control - last year I had to leave the party for awhile because my face was just going crazy and I'm not much fun to be around when that's happening. So today will be interesting. I can always get relief by going outside on my property (we live on 5 acres out in the country) or I can also go into my screen room for relief. In town in stores, restaurants, etc. I never know what to expect. Trust me, my life is not that bad. I don't get to do a lot of things I'd like to do, and I look and feel pretty weird a lot of times, but I can always get relief, at least at home. Thanks for your concern though! TomSpasm |
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