On the main bulletin board page there is a link for BEBRF at the top - contact them and they might have doctors that have been recommended in NY. Others might post back to you.
So sorry you are having this problem - why did the doctor change his diagnosis - on what grounds? As you had such good results from the botox injections (I assume it was botox?) why did he change it for a '2nd injection mix with some other drug'? I guess the answer to the latter question is that, telling you that you didn't have BEB, he wouldn't give you the same injections, but why the 2nd mix? Strange.
best wishes June in Toronto