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| Re: Letting people see your bad days | |||
| Re: Re: Letting people see your bad days -- afisher | Post Reply | Top of thread | Forum |
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Posted by: noonsmom ® 07/30/2012, 18:55:19 Edit |
"I hear from people "gee, your eyes look really good today, are they getting better?"" I forgot about that one Andrea. People ask that one a lot. I have to go into the "there is no cure for BEB. I will have this problem FOR THE REST OF MY LIFE! I will have to get shots at least four or five times a year. And yes, they hurt." mode. Then, of course, I have to explain that the Botox just quells spasms (sometimes). "THERE IS NO REMISSION, FOLKS." People have more sympathy for cancer. They're scared of cancer because it hits more people. We are the victims of an orphan disease. |
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