Blepharospasm Bulletin Board

Re: Are your symptoms worse when you walk?
Re: Are your symptoms worse when you walk? -- Carol near Toronto, Canada Post Reply Top of thread Forum
Posted by: lisao ®
08/17/2012, 18:28:27

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Carol,

Thanks SO much for taking the time to describe your experience in so much detail. I used to walk about 4-6 miles a day before I got BEB, and I would really like to get back to it. I plan to try your approach, and really appreciate the thoroughness of your explanation of what you do physically & mentally.

As far as the time and effort required to retrain the brain goes, it is daunting, but I keep hoping that even tiny gains will be encouraging enough to keep me motivated.

Also, I try to remind myself of what others have managed to do--for ex, the older man in Doidge's book who (with help from his son) learned to walk again after he was paralyzed by a really bad stroke. I forget the details, but my impression is that at first he spent hours and hours every day trying to move just a tiny bit, then a bit more, etc. It was a long, tough process, but in the end he was able to walk again. I think after he died, they looked at his brain and were shocked---the damage was MUCH more extensive than anyone had realized. Yet he'd managed to re-train what was left to do what he needed to do. Inspiring!

Lisa




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