Posted by: Susi ®
09/09/2012, 20:50:07
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Marcia,I am glad that the Sudafed works for you but for me, it seems to aggravate my spasms, as does anything with caffeine,even coffee or sodas. I too, would like to know what oral meds could help. I don't want to take anything that could cause more spasms or dystonia. I don't want something that messes with my head and I would need to get weaned off of it. Just something to take the edge off the anxiety and would not interact in a bad way with my other meds.
I seem to be losing my trust in doctors because they seem to know less about my health issues than I do. Even my neuro-opth just wants to inject the Botox and not discuss other meds or things that could help me cope with this disorder.
Susi
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