This Bulletin Board is sponsored and maintained by the Benign Essential Blepharospasm Research Foundation, Inc., a registered, non-profit organization dedicated to finding treatments, causes and cures for blepharospasm, Meige and hemifacial spasm. The Foundation pursues its goals through a three part program:
Because there is currently no known cure and even the best of the regular treatments are only partially effective, many patients search for additional relief outside the standard medical sources. A variety of treatments have been tried including manipulation, diet, herbs, food additives, relaxation techniques and spiritual approaches. From time to time patients will report some success with one of the alternative approaches, but no pattern has developed through the years of any one method permanently helping a number of patients. The Foundation does not discourage patient experimentation and is always interested to hear of promising methods of treatment. The opinions expressed in postings on this bulletin board are those of the individuals making the postings and thus do not necessarily reflect the views of the Benign Essential Blepharospasm Research Foundation or currently accepted medical thinking. As one of the regulars said of the bulletin board, "You will find it very helpful although you really have to filter out things and try to do what you think is best. You will hear from people of all faiths and medical beliefs. Some think that Botox is really harmful although the vast majority don't. That doesn't make them wrong and we need to respect their journey to find relief for themselves." It is our policy on our web site to not allow advertising of proprietary products or services. There is a definite danger of desperate and vulnerable patients being victimized by either well meaning or unscrupulous purveyors of unproved or ineffective claimed treatments or cures. Similarly, messages on the bulletin board of an inflammatory or abusive nature or those attacking other patients and their views will be subject to immediate removal. In order to post on this bulletin board, you must register. This involves completing an on-line form in which you supply a login name, a password and a valid e-mail address. An e-mail message will be sent to the address you supplied providing you with a URL you must visit to validate your registration. Although your e-mail address will be on file and accessible to the moderators, it will not be known to regular bulletin board users unless you include it in the appropriate field in your postings.
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