Web Resources of Possible Interest to Blefros

Web page updated in December, 2011
Disclaimer

Dystonia Medical Research Foundation WE MOVE's international listing of support organizations
National Institute of Neurological Disorders and Stroke (NINDS) Americans with Disabilities Act Technical Assistance
Social Security Disability Resources Dystonia Advocacy Coalition
Quackwatch - Your Guide to Health Fraud, Quackery, and Intelligent Decisions European Dystonia Federation
The Low Vision Gateway IntelliHealth's U.S. Pharmacopeia Database
Myobloc information Myobloc reimbursement services
Drugs that may cause dystonia Dana site for brain news
Botox information Botox Reimbursement Solutions
Hemifacial Spasm Association Medical Library Association (lists medical terms and acronyms on prescriptions)
National Library of Medicine (medical encyclopedia, dictionary and drug database)Merck Manual of Health Information
American Association for Clinical Chemistry (list of laboratory tests and associated terminology)WE MOVE News: A Research News Service for Patients and Caregivers
Healthfinder (U.S. Dept. Health & Human Services)  
Movement Disorder Society American Brain Coalition
Dystonia Coalition Dysport information
Xeomin information Xeomin patient co-payment program
  Dysport insurance coverage and reimbursement
Medical and general Web search engines Search for clinical trial information
Research Match Global Dystonia Registry
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Disclaimer

These links to other Internet resources are included for your information on the basis that they may be of interest to persons with BEB/Meige. BEBRF has no control over the content of these sites and thus the information contained in them may not reflect the opinion of BEBRF or current medical opinion. It is strongly urged that patients do not change treatment without first consulting their physician.
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