Blepharospasm Bulletin Board

The "Sunglasses Sign"
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Posted by: tatia ®
02/17/2012, 15:19:58


The subject of light sensitivity came up this week on both of the other forums I follow. Seems photophobia is common to many conditions.

A doctor on the other forum shared a study, current as of 2008, describing the "sunglasses sign." He saw the authors present this at the meeting of the American Academy of Neurology just a few years ago. They were teaching that a patient wearing sunglasses to the neuro-ophthalmologist's office is an indicator to predict "Nonorganic Visual Loss (NOVL)."

NOVL is a fancy way to say your vision problems are either psychogenic or you are faking it.




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Re: The "Sunglasses Sign"
Re: The "Sunglasses Sign" -- tatia Top of thread Archive
Posted by: In Indiana ®
02/17/2012, 16:21:04


I think that some health care providers who have never had any type of unexplained illness themselves absolutely cannot imagine what it's like. They are quick to pull the "psychogenic" card. What's laughable if it wasn't so sad is that these are the same ones who think pattients have nothing better to do than spend their time and money going from doctor to doctor, as if the patient just can't get enough of going to appointments and tests!
Sigh.
Have a great weekend!



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Re: The "Sunglasses Sign"
Re: The "Sunglasses Sign" -- tatia Top of thread Archive
Posted by: lastradioman ®
02/20/2012, 11:27:31


This is "code" for blowing off the patient, and any symptoms or presentations that do not tidily fit in to that MDs mindset. Easier for some MDs to order expensive tests and prescribe expensive Rx, and congratulate themselves.

Grrrrr.




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Re: The "Sunglasses Sign"
Re: Re: The "Sunglasses Sign" -- lastradioman Top of thread Archive
Posted by: freewave ®
03/08/2012, 21:45:04


What you're pointing out is funny, and true. Early on my primary care Internal Medicine doctor said something which I had to have him repeat because I couldn't believe he was saying it.

He said "If you never had previously experienced these symptoms you’re describing, you wouldn’t be here visiting my office today.” (Basically him telling me that I’m imagining it, or somehow doing it to myself). I had him repeat it squinting through my nearly completely closed eyes, then he ended with, you need to go see a Psychologist about the anxiety condition you appear to be having.

That’s what the first 6 doctors all told me, that I needed to see a Psychologist. When I saw the Psychologist she told me the results were inconclusive, but that I wasn’t having anxiety or a panic attack.

I went to a Psychiatrist, and she told me there wasn’t anything she could do for me, and that since all tests were negative, I was fine and should go back to work. When I pointed out that I was still sick and unable to work, she said “Well that’s unfortunate.” She said I could have my co-pay back and said have a nice day.

The only thing any doctor has come up with is that I have Blepharospasm, but at least that’s something to work with.

Dan



Modified by freewave at Thu, Mar 08, 2012, 21:47:39

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