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Posted by: monicavitzen ® 08/19/2012, 20:55:14 |
I'm still new to the board here, in the begining of my illness I had panic attacks for no reason I'm on medication for it now.Just wondering is this also normal? |
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Posted by: noonsmom ® 08/19/2012, 21:03:42 |
How can anyone experiencing the worst of BEB not feel anxious? Co-incidentally, my husband who is not a blepharo, has occasional panic attacks. For these he takes clonazapam. I also take clonazapam, but for spasms. Isn't togetherness wonderful? |
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Posted by: monicavitzen ® 08/19/2012, 21:23:38 |
Yes we should'nt have to do anything alone!I would hyperventalate for no apparent reason dr. gave me xanax helped a little then nuero dr gave me vyybrid 20mg a day it goes up to 40 but 20 worked for me.I don't have them anymore it just made no sense to me I was not scared, just outta the blue and it happened like every week. |
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Posted by: Susi ® 08/19/2012, 21:20:14 |
I had a few panic attacks when I was first diagnosed with BEB. I have gotten better since then but I used to have them occasionally before the diagnosis. I haven't had to have medication for that yet but I do have a lot of anxiety. It's pretty easy to get overwhelmed when you are trying to deal with your symptoms, trying to figure out how to adjust your lifestyle, and worrying about how the disorder is going to progress.
When I first started reading this forum, I felt really scared and sad about the whole situation. But the people here are so supportive and what's really great is they know exactly what you are going through. Keep posting. It's helped me so much. I know it will help you. Susi |
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Posted by: monicavitzen ® 08/19/2012, 21:31:56 |
Thx it has helped I said, oh my that guy knows what he's talking about after reding one post. It's like I'm an alien out here in the real world. |
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Posted by: lastradioman ® 09/03/2012, 13:38:45 |
My short answer is yes. I sometimes have panic/anxiety feelings. These may be attributed to concerns over my BEB and having to change lifestyles; difficulty adjusting to semi-retirement (I was in public safety for many years and felt "useful").. or some other unfounded boogeyman I ruminate over. The panic business is sudden and scary; the anxiety is lower-level but longer lasting, and feels almost like being wired up on too much caffeine. Did have an Rx for clonazepam, which dulls the anxiety/panic, but I would like get to the root of the problem as well.
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Posted by: jethart ® 09/03/2012, 15:09:34 |
I don't think I've had panic attacks, or if I did I just didn't recognize it as such. But anxiety is a different story. In the beginning, when my symptoms were just unrelenting blinking, I had lots of anxiety--especially when the blinking couldn't be controlled. This happened often during course lectures, and once the blinking began it seemed to feed upon itself, and the anxiety built up. Early on I took lorazepam and it helped me get through the mornings. Controlling the anxiety helped control the blinking. I managed to get my schedule set up so that most lectures were in the a.m. and staggered along. But like radioman, I had to face up to an early retirement package (teaching half-time) a couple of years before I had planned to take that step. It was demoralizing and life-changing. Nothing like feeling like half a person after years of carrying my own weight! I gradually adapted to the changed situation. Whether I liked it or not, acceptance helped to reduce the anxiety. I hope that you can get to that point also. That doesn't mean you have to like it!! I certainly don't. Joellen Modified by jethart at Mon, Sep 03, 2012, 15:12:10 |
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Posted by: kenavis ® 09/04/2012, 04:18:26 |
you can anxiety Depressions i take clonazepam my Doctors knows why: my blood pursuer is high most of the time why i been like this a lone time an go on in life an write sing an draw art drive my car .My eyes close on me my sister make fun of me all the time so i don :t care what she says to me any more i wrong in every thing so let it be that way my other sister died i was not married to here as so many ask me in the waffle house in vidor Texas people can cuss me out an shot pistol gun at me on my own land an than try to get me killed every where i go so come in to my house an try to beat me up are pull a gun on me
i go to wall marts to get my blood presser check film it with my mobile phone for records film my waffle house in Vidor Texas an a in other eating places ticket for records i can forgive them for saying I WAS WORKING AT A PLACE WHEN I WAS NOT WORKING THEIR TRYING TO PUT ME IN JAIL ARE IN behind bars trying to get me send money to Ghana when some are here in united states seating at the vidor waffle house all the time an other places trying to get people to send money over sea o my hot mail the bank lawyers had them trace said not to be sending money to any one over seas my eyes closes on my but people don,t care about you when they can rob your are come an get your lawn mower an weed eater on your front porch brake in you house an when your gone kids was walking be hide my sisters in wall marts an dollar store an an trying to get money out of my sister hand bag when i turn around to tall them to stop trying to get money out of my bill fold are my sister hand bag i was cuss out in the post office an other stores an other places my other say is my fault for going to the wall marts an the Dollar store no one is safe in wall marks any more as for as i am concerns i had problem going to my insurance agents 3 guys was waiting their to beat me up so you got to be careful going an where this day an time kenavis i turn around to see any one behind an beside in front of me to be safe in side any eating place are shopping place be relax be safe don ,t let some mess up your day are night |
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Posted by: lisao ® 09/03/2012, 18:08:52 |
I've had panic attacks in the past, due to erratic hormone levels during menopause. I'd be drifting off to sleep and wake up in terror feeling like my system was shutting down. This would happen a few nights in a row, then not again for months. Xanax was a godsend (half of a .25 mg tab for a night or two was enough to take care of the problem). Recently, I have been having an odd, similar issue when going to sleep---I get tingly all over and get the physical panic feeling sometimes. I have a feeling it's thyroid-related because I am being treated for an underactive thyroid. I've always had some level of anxiety, even as a child. It got worse after I had kids because then I worried about getting sick or dying (and not being there for them). As they got older, I worried more about their well being; my most acute anxiety ever has been about a health problem one of them has. By the way, Dr. Farias, a Spanish doctor who treats people with focal dystonias using brain plasticity (and has treated some people who post on this board) said in his book that almost every focal dystonia patient he's treated went through a period of acute stress before developing focal dystonia. Also, a period of poor sleep. I definitely had both. So, my anxiety preceded my blepharospasm (though BEB obviously doesn't help matters).
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Posted by: Susi ® 09/04/2012, 21:31:43 |
Lisao,
Have you been tested for sleep apnea? Susi |
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Posted by: lisao ® 09/05/2012, 06:38:11 |
No, and I have wondered about that. I think the panicky awakenings I experienced during menopause were probably just hormonal since they were always tied to my cycle (coming only when my cycle was erratic, and then, always right before a period). That kind of thing is not uncommon during menopause. (In fact, I just sent an article attributing symptoms like these to perimenopause to a friend who is now having them--I think the article said the sensations were caused by hormonal imbalances.) But the stuff I've been experiencing for the past year is different. Now, the panicky feeling is preceded/accompanied by this intense tingling all over that goes on for ages. I don't get the stuff every night, but nearly. Does that tingling sound like sleep apnea? How does one get tested for that? What kind of dr?
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Posted by: pdb ® 09/05/2012, 19:56:32 |
That doesn't sound like sleep apnea; to be sure, get tested - your regular doctor will have to refer you to a specialist, and it may involve a sleep study (overnight stay while being monitored). Peter |
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Posted by: lisao ® 09/05/2012, 20:23:43 |
Thanks, Peter. I've mentioned the symptoms to my internist, who told me to tell the neurologist about them. When I did that, I told the neurologist I thought it might be my thyroid; she seemed happy to leave it at that. But I should explore further. |
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Posted by: Norah-Jean Perkin ® 09/04/2012, 08:37:03 |
I'm not sure that I've actually had panic attacks, but severe anxiety definitely accompanied the development of BEB/Meige. Even doing simple things, such as getting ready to go the graduation of students I taught one subject -- would make me shaky and upset. Getting ready to go on a trip, packing for anything, was terrible. I take Lorazepam now, 1 mg in the evening at the same time as I take Zoloft, and 1 mg. after lunch before I do about an hour of relaxation exercises/meditation/yoga. I've learned to give myself lots of time for various things and prepare as well as I can, and that helps with the anxiety. But sometimes knowing that my face is doing funny things embarrasses me, even at home around my family, and that adds to the anxiety, and then, of course, to the spasm.s All of the above has helped with the anxiety, which also helps with the spasms, though all bets are off as soon as I get behind the wheel of a car. Driving locally does not make me anxious, but even when I can keep my eyes open fairly well at the right period in my Botox cycle, my mouth seems to be fighting the Botox and trying to go off on its own little dance. Talking and singing to myself used to help, but not much any more. Norah-Jean in Stratford |
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Posted by: Linda D ® 09/04/2012, 12:19:30 |
Since being diagnosed with BEB I also have bouts of anxiety. My Primary care doctor just prescribed Valium 5mg. I have never taken any type drug before ,just have botox shots. She tells me this will also help with my spasms.Has anyone else taken this? |
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Posted by: Norah-Jean Perkin ® 09/04/2012, 16:03:16 |
I believe Valium is in the same class of benzodiazepine drugs that Lorazepam/Ativan, etc. are in. It's considered an anti-anxiety agent/muscle relaxant.
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Posted by: monicavitzen ® 09/04/2012, 21:10:32 |
Thanks for all the feed back I thought I had something else wrong.I hyperventalate,hands draw up, and cry, my heart races as if I were on diet pills.Doc gave me vyybrid 20mg said I may wanta move to 40mg.I tried low does xanax it helped but didn't stop it.The vyybrid has worked several months now but,those feelings are returning. I just hate to take med.I dropped the xanax when I started the new med.I'm 35 I've had BEB 4 years only been diagnosed 2 years.Still working have one minor child at home.The panic attacks come outta nowhere it just happens, my mother thought someone had upset me,guess I was under the same impression that something would have to upset you to panic like that. |
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Posted by: Linda D ® 09/04/2012, 22:14:00 |
Thanks for the information.So do you think this is a good choice?I have not taken it yet. |
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Posted by: tatia ® 09/05/2012, 07:56:19 |
Valium is sometimes used to treat dystonia, and it's related to Klonopin as well as the drugs Norah-Jean mentioned. Years ago, I was prescribed the 10 mg. dose of Valium, and my neurologist called that a "baby dose." |
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