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Blepharospasm Symposiums and Support Group Meetings

Updated September 21, 2018

BEBRF Symposiums
BEBRF Support Group Meetings
Blepharospasm Support Groups
Other blepharospasm meetings
Form for submitting meeting information to be posted here

BEBRF Symposiums

In 2019, the Annual Symposium will be held in Houston, TX on Saturday, September 7. There will be a Meet & Greet in the evening of Friday, September 6. Details will be posted as they become available.

BEBRF Support Group Meetings

Ridgeway, VA
Date:Saturday, September 22, 2018
Time:1:00 - 4:00 PM
Location: Clarence's Steak & Seafood House
6636 Greensboro Rd
Ridgeway, VA   24148
Contact: Peggy Gilley
Tel: 276-956-3555

Leawood, KS
Date:Sunday, September 30, 2018
Time:1:30 - 4:00 PM
Location: Sabates Eye Center
11261 Nall Avenue
Leawood, KS   66221
  • Speaker: Matthew Sniegowski, M.D., Ophthalmologist - Sabates Eye Center
  • RSVP Sharon Nowlin
Contact: Sharon Nowlin
Tel: 913-499-0443

Waterford, NY
Date:Wednesday, October 10, 2018
Time:Noon -
Location: 46 Harris Rd
Waterford, NY   12188
Pot Luck Luncheon - Bring a dish enough to share with 5-6 people
Contact: Sandy Mincher
Tel: 518-542-2328

Silver Spring, MD
Date:Sunday, October 14, 2018
Time:1:30 - 3:30 PM
Location: Holy Cross Hospital
1500 Forest Glen Road
Silver Spring, MD 20910
  • Chair Yoga with qualified teacher
  • Parking on hospital grounds
  • Bus: Mont. Co. #8
  • Metro: red line to Forest Glen Station or Silver Spring Station. Then Mont. Co. bus #8 or walk 1/2 mile
  • RSVP by Jennifer Kawar
Contact: Jennifer Kawar
Tel: 301-229-4038

Hurst, TX
Date:Tuesday, October 16, 2018
Time:Noon - 3:00 PM
Location: Dallas Baptist University
910 Grapefruit Highway
Hurst, TX   76054
Contact: Ena Wilmot
Tel: 817-488-0445

Madison, WI
Date:Thursday, October 18, 2018
Time:1:00 PM -
Location: Alicia Ashman Public Library
733 N. Highpoint Rd
Madison, WI   53717
  • RSVP Gail Grueneberg
  • Representatives from Merz Pharmaceuticals will provide an introduction to Xeomin
Contact: Gail Grueneberg
Tel: 608-271-0313

Tinton Falls, NJ
Date:Saturday, October 20, 2018
Time:Noon - 3:00 PM
Location: Seabrook Village Town Square
3000 Essex Road
Tinton Falls, NJ   07753
Contact: Virginia Hill
Tel: 732-566-0947

Newton, MA
Date:Sunday, October 21, 2018
Time:1:00 - 4:00 PM
Location: Newton - Wellesley Hospital
2014 Washington St
Newton, MA   02462
Speaker: Dr. Okeanis E. Vaou, Asst. Prof. of Neurology, Boston University School of Medicine
Contact: Sande Young
Tel: 617-527-1726

Huntsville, AL
Date:Sunday, October 28, 2018
Time:1:00 - 4:00 PM
Location: Dowdle Center
109 Governors Drive SE
SE Huntsville, AL   35801
Contact: Linda Webb
Tel: 256-723-2661

Tucson, AZ
Date:Sunday, October 28, 2018
Time:1:30 - 4:00 PM
Location: Nanini Branch Library
7300 N Shannon Rd
Tucson, AZ   85741
Contact: Jeannie Fruean
Tel: 520-971-4362

New York, NY
Date:Sunday, November 11, 2018
Time:11:00 AM - 1:00 PM
Location: Mt. Sinai West (formerly Roosevelt Hospital)
1000 Tenth Avenue between 58th and 59th Streets, 14th Floor
New York, NY
Barbara Benton, BEBRF Eastern Director, will share updates from the Symposium in Atlanta and tips from other support groups in the region
Contact: Helene Lauffer
Tel: 212-496-0294

Other Blepharospasm Meetings

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