Blepharospasm Bulletin Board

Re: Tolerance to medical Botox after long-term treatment
Re: Re: Tolerance to medical Botox after long-term treatment -- Shirley Barr in New Mexico Post Reply Top of thread Forum
Posted by: Jaye Denman ®
06/04/2015, 22:24:54

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Gosh, Shirley - We seem to be having mirror experiences with our injections not working. I worried for years about developing antibodies that would make Botox ineffective (have read opposing views about that possibility), but it worked so well for so long that I relaxed and forgot to worry!

Now my symptoms are so pronounced that I'm miserable, stressed to the max and feel nearly helpless. I have Meige syndrome in the nose area, but it's never moved further down my face. The Meige symptoms were not in evidence at all before I had the injections, but THEN they began and my eye spasms--as you put it--went into overdrive the next day and haven't lessened. My photophobia is also worse--so extreme that I can't open my eyes at all outdoors until dusk.

It's been three weeks today since I had the series of injections (I've always used an entire vial of the botulinium). I will talk to my doctor about trying the Xeomin. Thanks for suggesting it. Have you taken both formulas?

Jaye




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